In my previous blog regarding transplant data, I outlined the difficult decision that blood and marrow transplant centers face when it comes to retrieving data from CIBMTR: do they choose to retrieve data that is easily accessible or data that is comprehensive? Pick just one!
But putting aside this longstanding conundrum for a moment, let’s assume that your center has access to all the data it could possibly want. Now what? How will you maintain it so that it can ultimately be used to improve patient care?
Many transplant centers manage their clinical data in spreadsheets. When you consider that a patient intake form alone can consist of 700 fields of data, cobbled together from disparate systems by dedicated data specialists, the drawbacks quickly become apparent. Spreadsheets—and homegrown systems—can be cumbersome to maintain, inflexible at such a large scale, and have no built-in organization to leverage.
Every day, knowledge in the field is expanding, meaning every day your dataset could get bigger. As a result, transplant centers that would like to use their highly relevant clinical data to jumpstart quality improvement initiatives find that they simply don’t have the back-end organization (or manpower) to translate data into discovery.
So what does it take to turn your center’s treasure trove of patient data into actionable insights that can literally be used to save lives? You need a data management system that seamlessly scales to support large volumes of future data as well as visualizations on that data; quickly adapts to changing CIBMTR or center dictates; and is accessible to stakeholders for on-demand querying and reporting
Such a system is a huge undertaking, but your center doesn’t have to recreate the wheel; Liaison has already created it for you. The cloud-based Liaison BMT registry solution provides everything you need to aggregate, organize, and derive life-saving insights from all your clinical data.