When I was a BMT (blood and marrow transplant) coordinator, I was intimately involved in every aspect of a transplant recipient’s care—and in their lives as well. I could have told you my patients’ medical histories, allergies, past and upcoming treatments, family members’ names—probably even their favorite places to vacation.
I acquired as much knowledge about my patients as I possibly could to ensure the best chances for transplant success. At this micro level of patient knowledge, I was an over achiever.
But at the macro level, my tools were woefully inadequate. I can remember feeling incredibly frustrated when physicians or other transplant team members would ask me how past patients of mine had fared on a proposed treatment. Anecdotally, I might have been able to speak to one or two recent outcomes, but I had no way of definitely identifying trends that might influence a proposed treatment’s success or failure.
The desire to find a way to aggregate and correlate patient data in order to identify trends and improve outcomes drove me to a new role at my hospital: quality improvement specialist. And while I did very meaningful work in this role, it was here that I discovered that the data needed to impact outcomes on a large scale often didn’t exist. Or, if it did, it wasn’t easily accessible.
I also discovered that this problem wasn’t unique to my hospital—or the BMT field.
Most hospitals, clinics, providers—certainly BMT centers—didn’t have the budgets or IT expertise to design systems capable of capturing, querying, and visualizing the wide breadth and depth of secondary data needed to advance the cause of population health.
So I switched roles again, this time to tackle the problem at its IT root. And over the past three years, I’ve had the privilege of overseeing the development of Liaison’s cloud-based BMT registry solution.
My extensive BMT healthcare background—and first-hand frustrations—have helped shape a data management tool that truly addresses the needs of BMT centers. Yes, our registry solution offers built-in interoperability with AGNIS (and CIBMTR FormsNet), something we’re quick to tout as these are mandated activities, but more important, it offers BMT centers the freedom to design their own forms, run ad-hoc queries, and generate custom reports. Trend-specific protocols, treatment/complication correlation, survival rates, long-term follow-up care—these can all be built into Liaison’s registry so that more insights can be uncovered and more lives saved.
As more and more centers use Liaison’s BMT registry solution to answer all those questions I couldn’t answer, then I’ll know my time has been well spent.
By Danielle Siniscalchi, Liaison Technologies Sr. Director, Registry Solutions